Influencer Hannah Campbell is honoring her late daughter Elliana Rose, who handed away at 10 months previous.
“At the moment we costume with heavy hearts to have a good time a life that modified ours perpetually. That is for you, Ellie,” Campbell captioned a video shared by way of TikTok on Sunday, April 13, which confirmed her making use of make-up, curling her hair and dressing in all black for Elliana’s funeral.
She additionally shared footage by way of TikTok of her husband Jacob Campbell and their different daughter Ember preparing for the memorial.
Hannah introduced on April 8 that Elliana had died lower than one yr after she was born with a uncommon pores and skin situation known as junctional epidermolysis bullosa (EB), which causes painful blistering. The situation is an inherited sickness normally showing in infants or younger adults, in keeping with the Mayo Clinic, and has no remedy. Infants born with the situation are known as “butterfly kids” as a result of their pores and skin is so delicate.
As influencer Hannah Campbell mourns the dying of her 10-month-old daughter, Elliana Rose, she can be doing her half to battle the illness that affected her child lady. Campbell introduced on Monday, April 7, that her daughter had died after a battle with epidermolysis bullosa, sharing a heartfelt message by way of TikTok through which she stated […]
“In loving reminiscence of Ellie,” Campbell wrote alongside a video shared by way of TikTok on the time. “She handed peacefully final evening, wrapped in love.”
@ellianas_journey At the moment we costume with heavy hearts to have a good time a life that modified ours perpetually. That is for you, Ellie. #elliestrong #FindACureForEB #EBawareness #ourjourney #flyhighangel #fyp #EpidermolysisBullosa #BUTTERFLYBABY #babytok #babiesoftiktok #infantloss #funeral
Her caption continued, “I don’t know what to do with myself at the moment. I’m heartbroken, and I’m indignant. No youngster ought to must endure what she did. EB stole her from us. Let’s battle for a remedy so no different household has to really feel this. Thanks for loving her with us.”
On the day of Elliana’s funeral service, Hannah shared one other video by way of TikTok together with her youngster’s dermatologist, Dr. Diana Reusch, who had traveled to attend the funeral.
“Hannah and Jacob knew that Ellie had EB, however they hadn’t gotten readability but about precisely what subtype Ellie had,” Dr. Reusch stated within the video. “Ellie was not solely in danger for intensive pores and skin wounds, but in addition respiratory and Dietary points.”
Influencer Lauren Cummings Johnson and husband Wilson Johnson are mourning the lack of their 9-month-old daughter, Lily Ann. “Our candy Lily Ann went to be with Jesus on Sunday, April 6,” Lauren and Wilson wrote in a joint put up shared by way of Instagram on Monday, April 7. “She was precisely 9 months previous, 9 months our […]
Youngsters born with EB, stated Dr. Reusch, aren’t anticipated to dwell previous infancy. “Ellie was preventing for her life for the reason that day that she was born,” she continued. “There’s no method that Ellie’s dad and mom might have recognized forward of time or prevented Ellie’s situation.”
Dr. Reusch added that there’s at present “no remedy for EB,” saying, “I can’t start to let you know how terrible that felt to inform Hannah and Jacob there’s nothing that Ellie’s dad and mom might have executed to alter what occurred.”
“The encouraging information is that I do suppose there’s hope on the horizon as science and gene remedy advances,” she continued. “We’re not there but, however within the years to return I feel we are able to get there.”
